[et_pb_section fb_built=”1″ admin_label=”!!! PLEASE DO NOT EDIT !!!” _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_row admin_label=”!!! PLEASE DO NOT EDIT !!!” _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”TO BE EDITED – SUMMARY – Click on the WHEEL icon to open the textarea where you can paste or type your summary. The summary condenses the main points for the news that starts below. The summary is in bold and not longer than 300 characters, including spaces. The counter at the bottom can help.” _builder_version=”4.21.0″ _module_preset=”default” custom_padding=”||20px||false|false” global_colors_info=”{}”]<\/p>\n
At the 2024 World Health Summit, Rare Diseases International hosted a side event on prioritising rare diseases in global health policy. Key takeaways: integration into health systems, addressing wider impacts, and political will.<\/strong><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n [\/et_pb_text][et_pb_text admin_label=”TO BE EDITED – TEXT OF THE NEWS – BLOCK 1 – Click on the WHEEL icon to open the textarea where you can paste or type your news. PLEASE USE ONLY THE FEATURED IMAGE FUNCTION on your right column to add the image.” _builder_version=”4.21.0″ _module_preset=”default” custom_padding=”||1em||false|false” global_colors_info=”{}”]<\/p>\n At the 2024 World Health Summit in Berlin, Rare Diseases International (RDI)<\/a> which is a P4H partner hosted a side-event entitled \u201cWhy Prioritize Rare Diseases in Global Health Policy? Aligning with the World Health Assembly (WHA) Resolution on Rare Diseases\u201d, on October 13th, 2024. Representatives from the Ministries of Health of Egypt, France, Spain, and Qatar participated alongside a diverse panel including 4 speakers with lived experience of rare diseases.\u00a0The event was well attended with over 100 attendees over the course of the event, both in-person and on-line. You can read <\/strong><\/u>the<\/strong><\/u> event report here<\/strong><\/u><\/a> to see the event highlights. You can also watch the full event here.<\/u><\/a> Amidst a very productive and insightful discussion, 3 principal takeaway messages emerged:<\/p>\n\n